Hearing "you have cancer" shifts everything. I don't want to be a fucking warrior and survivor. I want not to have cancer.
While the treatments have improved outcomes, they do so with heavy side effects and SERIOUS secondary risks to other vital organs and general health.
What I'm concerned about are cascading impacts. I'm not 45, I'm nearly 63; overall just older and more vulnerable. I have chronic kidney disease. So NSAIDS are out of the question. I have osteopenia. There may be other unidentified health issues that could emerge as a result of treatment impact.
By cascading impact I'm thinking: Aromatase inhibitors can cause severe joint pain. This pain interferes with quality of life and reduces motivation to move, and no NSAIDS can be taken. Reluctance to push through pain and exercise thus increases, causing more poor health. Cheerleading to "push through" and exercise will only do so much. I spent years in all over body pain from my mid-40s until I dropped all my weight. I have relished feeling pain free (for the most part) and the vitality it offers. The prospective return to the pain state is depressing.
Radiation treatment can damage the heart, leading to surgery for repairs. It can damage lungs leading to breathing problems. It can cause secondary cancers. It's RADIATION.
And yes, cancer can be managed. There are people living with stage 4 cancers as chronic conditions. But it's a compromise, and capacity is reduced. Mobility and energy are severely impacted.
Last year I was healthy. This year I have two malignant tumors. I have plans and goals that I may no longer have ability to pursue. I do not want my Mom's elderhood experience. It was miserable. It began in her mid-60s and was a long slide into pain and decrepitude.
So right now I'm enraged about this turn of events. I don't feel philosophical about this. I don't care that the big C isn't as lethal as it was decades ago. It's still lethal, and recurrence can happen, and it means living with this fact in the forefront of my mind for the rest of my days. And that's after I have surgery to amputate part or all of my breasts. Recovery from that can take painful months. Meds are hard on the body, and I get to take them for up to a decade so the breast cancer doesn't return in some other part of my body. While my bones disintegrate in the process on the medication.
We're all mortal and older, and we know this intellectually. I tell you that it feels very different, dire and scary, when it becomes the actual reality. This diagnosis feels like I got pushed off a cliff. And yes, I'm glad it's not stage 4. But it's still fucking cancer.
Comments attempting to reassure me of the good outcome possible blithely ignore the monumental impacts and suffering to potentially achieve this. Those comments are relevant to me strictly coming from women who have faced the same situation, options, and decisions.
As I learn about having multifocal/multicentric breast cancer, gather information about treatment, and face decisions, I'm not sure I have the desire or tolerance to share more details ongoing. I'm angry and grieving. I need to get through this with as much equanimity as possible. And I need to help my child cope with momma's illness while he's trying to graduate and be excited about college and launching into independence. It's fucking sad is what it is.
While the treatments have improved outcomes, they do so with heavy side effects and SERIOUS secondary risks to other vital organs and general health.
What I'm concerned about are cascading impacts. I'm not 45, I'm nearly 63; overall just older and more vulnerable. I have chronic kidney disease. So NSAIDS are out of the question. I have osteopenia. There may be other unidentified health issues that could emerge as a result of treatment impact.
By cascading impact I'm thinking: Aromatase inhibitors can cause severe joint pain. This pain interferes with quality of life and reduces motivation to move, and no NSAIDS can be taken. Reluctance to push through pain and exercise thus increases, causing more poor health. Cheerleading to "push through" and exercise will only do so much. I spent years in all over body pain from my mid-40s until I dropped all my weight. I have relished feeling pain free (for the most part) and the vitality it offers. The prospective return to the pain state is depressing.
Radiation treatment can damage the heart, leading to surgery for repairs. It can damage lungs leading to breathing problems. It can cause secondary cancers. It's RADIATION.
And yes, cancer can be managed. There are people living with stage 4 cancers as chronic conditions. But it's a compromise, and capacity is reduced. Mobility and energy are severely impacted.
Last year I was healthy. This year I have two malignant tumors. I have plans and goals that I may no longer have ability to pursue. I do not want my Mom's elderhood experience. It was miserable. It began in her mid-60s and was a long slide into pain and decrepitude.
So right now I'm enraged about this turn of events. I don't feel philosophical about this. I don't care that the big C isn't as lethal as it was decades ago. It's still lethal, and recurrence can happen, and it means living with this fact in the forefront of my mind for the rest of my days. And that's after I have surgery to amputate part or all of my breasts. Recovery from that can take painful months. Meds are hard on the body, and I get to take them for up to a decade so the breast cancer doesn't return in some other part of my body. While my bones disintegrate in the process on the medication.
We're all mortal and older, and we know this intellectually. I tell you that it feels very different, dire and scary, when it becomes the actual reality. This diagnosis feels like I got pushed off a cliff. And yes, I'm glad it's not stage 4. But it's still fucking cancer.
Comments attempting to reassure me of the good outcome possible blithely ignore the monumental impacts and suffering to potentially achieve this. Those comments are relevant to me strictly coming from women who have faced the same situation, options, and decisions.
As I learn about having multifocal/multicentric breast cancer, gather information about treatment, and face decisions, I'm not sure I have the desire or tolerance to share more details ongoing. I'm angry and grieving. I need to get through this with as much equanimity as possible. And I need to help my child cope with momma's illness while he's trying to graduate and be excited about college and launching into independence. It's fucking sad is what it is.
